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Work with your body!

In this section, we discuss the role of self-management as a way of reducing added stressors and triggers. The best we are able to manage our own condition the easier it is to adjust to the many changes we face.

Here are a few tips to help get you started. 


Pacing your activity and not overdoing things can play a crucial role in our perception of pain and discomfort.

The more exhausted we become the harder it is deal with both physical and emotional challenges. This is NOT to say that pain isn't real... it most certainly is!

Learning to live within your limitations can be a huge challenge so don't be too hard on yourself, listen to your body and don't push too hard.  Find time for relaxation, rest and of course a little fun if you can!

Allow friends and family to support you while you adjust, they need to feel useful sometimes too! Lots of our members are parents and carers and they often tell us they wish they could help more... so let them! 

Plan Ahead

Diet Modification